LADD Syndrome Didn't Stop Us: A Family's Story of Joy and Defiance

Lacrimo-Auriculo-Dento-Digital (LADD) syndrome is an extremely rare genetic condition—so rare that Madison Sisson was only the 13th known case at the time of her diagnosis. Now a mom of two boys who also have LADD, Madison shares what it’s like to raise children with limb differences, hearing loss, and feeding challenges—all while building a joyful, fully lived family life.

 

In this candid and moving conversation, she reflects on her journey through mom guilt, medical roadblocks, viral TikToks, and the moment People Magazine reached out to share their story with the world. Madison and her husband have faced pressure, judgment, and fear—but their unwavering love for their sons has turned hardship into testimony.

 

Follow Madison’s family journey: @madisisson on Instagram

Read the People Magazine feature: Mom Opens Up About Raising Sons with Rare Immune Condition


Disclaimer: 3W Medical for Women is a program of Women's Accessible Medical Services, PS (WAMS). The information shared in this podcast is the opinion of the speaker, or speakers. Medical information is not intended as individual medical consultation, but for general education only. Always consult your own health professional for personalized advice regarding medical decisions.